About


OUR VISION

Down Syndrome Alabama envisions being the trusted, statewide resource that connects individuals with Down syndrome and their families to the people, programs, and opportunities that help them thrive across every stage of life

OUR HISTORY

The Beginning

Down Syndrome Alabama was founded in June of 1987 by a small group of dedicated parents who came together with a shared purpose: to advocate for their children with Down syndrome and to ensure they had access to opportunity, support, and acceptance. At a time when resources were limited and awareness was still growing, these parents recognized the power of collective advocacy and community. They incorporated the organization under the name PADS (Parent Advocates Down Syndrome), establishing a formal structure that allowed their voices to be heard more broadly. 

April 23, 2013

In August of 2012, the Board of Directors made and seconded a motion to permanently change the organization’s name to Down Syndrome Alabama, reflecting a clearer identity and a broader statewide vision. On April 23, 2013, the amendment was officially filed, formally establishing Down Syndrome Alabama as the organization’s name and signaling an intentional step forward in its growth and mission.

The Present

In 2025, we are a forward-focused organization, built on strong governance, sound financial oversight, and clear strategic direction. We're evolving from a period of rebuilding into a season of growth, expanding programs, deepening partnerships, and strengthening its statewide reach. With updated bylaws, effective systems, and leadership aligned with best-practice governance and term limits, DSA is well positioned for long-term sustainability and impact. The organization now stands confident in its ability to serve individuals with Down syndrome and their families across Alabama, at every age, stage, and region.


OUR TEAM



BOARD OF DIRECTORS

Directors Emeritus

Dr. John Cortopassi, MD

Betty Bell

Joe Lawhorn, President

Jenny McInerney, Vice President and Treasurer

Jennyfer Souza, Secretary

Grace Davis, Self-Advocate

Beth Camp

Allison Crawford

Brian Fleury

Deborah Mattison

Dr. Snehal Khatri

Dr. Christina Shepard Norman

Trent Kocurek

Jonathan Wells

Nicole Odrezin

Kathy Olive

Kathy Paiml

Jennifer Rucker

Scott Shunnarah

Jonathan Wells

Missy Haughery



JUNIOR BOARD OF DIRECTORS

JR board group

John Roddam, President

Layna Lovelady, Vice President

Aleksandra Foksinska, Secretary

Emily Berry

Beverly Blount

Nate Buchanan

Joshua Byrd

Andrew Calhoun

Taylor Cater

Rachel Hamm

Jayla Jackson

Chase Lacy

Bethany Lee

Kaitlyn Nelson

Emily Peters

Emma Phillips

Jaslyn Richardson

Kaitlyn Rogers

Katherine Savage

Pete Schilli

Savannah Scott

Abi Shaw

Gage Young

To Register for DSA's Junior Board, click below and fill out the application. Junior Board membership is open to individuals between the age of 23 and 39.

Down Syndrome Alabama is a proud member of these national organizations